-
Continue reading →: A Belated Goodbye to 2025 (and a Gentle Hello to 2026)I had my last home SCIg infusion yesterday. My stomach is swollen and sore, my energy is low, and yes… I feel every bit of it. But I also feel I cannot delay this post any longer. Living with CIDP and managing SCIg treatments is a daily balancing act, and…
-
Continue reading →: My First CIDP Meet-Up in Kraków: Sharing Stories and Support – 29 Nov 2025The Day My CIDPJourney Crossed with Others’ I live with Lewis-Sumner syndrome, a rare variant of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Saturday, November 29th, 2025, is the date I’ll probably remember till the end of my life. That day, I met a handful of CIDP Warriors in Kraków, Poland. The…
-
Continue reading →: The Day CIDP Treatment Came Home: My First SCIg InfusionA Pump, a Plan, and a Lot of Feelings: My First SCIg at Home I don’t just live with a rare neurological condition called Chronic Inflammatory Demyelinating Polyneuropathy—apparently, that alone wasn’t quite dramatic enough. To fully commit to the plot twist, I also live with its rarer variant: Lewis-Sumner Syndrome.…
-
Continue reading →: Changing the Way I Fight CIDP: Moving from IVIg to SCIgCIDP, Lewis–Sumner, and My Long Journey to Naming the Beast I live with CIDP — specifically the rare Lewis–Sumner Syndrome variant. After years of painful, frustrating twists on my diagnostic path, I was desperate for answers. Why were my left hand and arm slowly — but unmistakably — refusing to…
-
Continue reading →: CIDP and Hospital Stress: How I Survived IVIg and Embraced the SCIg Idea at Homenovember to remember on my CIDP journey I’ve had my share of busy days, weeks, and months like everyone else, but November 2025 is definitely competing for the G.O.A.T. trophy —so much has happened that it’s felt like a whirlwind. November 1st is All Saints’ Day in Poland, a very…
-
Continue reading →: Thanksgiving Gratitude: 5 Things I Never Take for Granted While Living With CIDPIt’s Thanksgiving day today in the USA. Today is one of those days when the homesickness settles in—when I find myself missing America, my friends, and all the little pieces of life I loved there. But since today is cold and gloomy here in the southeast of Poland—and moping around…
-
Continue reading →: What the 2025 Nobel Prize Discovery Means for CIDP Warriors EverywhereI know this happened weeks ago, but I just stumbled across it—and as they say, better late than…later! On October 6th, 2025, the Nobel Prize in Physiology or Medicine went to Mary E. Brunkow, Frederick J. Ramsdell, and Shimon Sakaguchi. Photo: Cecilia Odlind / Karolinska Institutet (via NobelPrize.org) They were…
-
Continue reading →: Honoring My Neurologist: A Heartfelt Tribute to the Doctor Who Eased My CIDP JourneyMy blog has started getting a bit more traffic lately—not enough for a celebration, but enough to make me reflect. I actually came here to take down a few posts. Their readability is low, they clutter the blog, and honestly, they don’t offer much value to anyone. I think it’s…
-
Continue reading →: 10 Signs of CIDP You Shouldn’t Ignore: Early Symptoms Every CIDP Warrior Must Know
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare autoimmune neurological disorder that often takes years to diagnose—because its early symptoms can be subtle, inconsistent, and easy to dismiss. If you catch it early, it will make a real difference in how well symptoms are managed (rehab, treatment, mental resilience) and…
-
Continue reading →: The Healing Power of Silence on the CIDP Journey: Dr. Joe Dispenza’s Wisdom for Hard DaysThe Healing Power of Silence: What Dr. Joe Dispenza Teaches Us (and Why It Matters For CIDP Warriors on Tough Days) I live with Lewis Sumner Syndrome, a rare variant of CIDP, an autoimmune neurological disorder. If living with a chronic illness has taught me anything, it’s this: the world…
CIDP & chronic illness insights: wellness, stress relief, and practical tips for everyday life
Hello
I’m Anna
I live with Lewis-Sumner Syndrome, a rare variant of CIDP.
On this blog, I share my experiences, coping strategies, and small adjustments that help me navigate daily life with a rare chronic neurological condition.
Whether you’re managing CIDP or another chronic illness, you’re not alone here — and I hope these reflections and tips make your journey a little easier.
Let’s connect
Join the CIDP Warriors!
Stay updated with my latest posts by joining newsletter.
