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Continue reading →: What is Japanese walking Method
I live with Lewis-Sumner syndrome [CIDP variant] —a disorder with “chronic” right in the name—which basically means I’ll never stop searching for ways to support my health, find stress relief, and discover new self-care inspirations. And here I am today, discovering this curiosity called Japanese walking method a.k.a interval walking…
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Continue reading →: Fatigue for Every Occasion: A 21st-Century Survival Tale
The Many Faces of Tiredness Come spring, I started feeling a bit more fatigued than I could handle. I began searching for innovative ways to tackle it—and suddenly, I catapulted myself into a world of fatigue I didn’t even know existed. I was shell-shocked by how many types of fatigue…
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Continue reading →: Beat Spring Fatigue with CoQ10: Your Natural Energy Boost
Spring fatigue hit me harder than usual this year. Mornings were a struggle — I felt unmotivated, irritable, a little down, and completely unable to focus during the day. The past few winter months haven’t helped: switching from IVIg to SCIg left me drained. I now have the freedom of…
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Continue reading →: Natural Remedies for Spring Fatigue: Boost Energy & Beat TirednessCIDP, self-care, spring time fatigue, natural remedies,
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Continue reading →: Why Am I So Tired in Spring? Understanding Spring Fatigue and 7 tips How to Beat It NaturallyEvery year when spring arrives, something curious happens — but this year, it feels even more curious than before. Part of me feels like I should be outside — waving airport-arrival-hall-style signs that say “Welcome back, storks!” or frolicking through meadows in search of the first primroses. Or, if I’m…
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Continue reading →: IVIg and SCIg Side Effects in CIDP: What to Expect and How to Manage Them
When I was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) — specifically the rare Lewis-Sumner variant — in 2022, immunoglobulin therapy became part of my life. I started with IVIg.Recently, I switched to SCIg. Both treatments help (read here) slow disease progression and stabilize symptoms.Both can improve quality of life.…
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Continue reading →: February Rare Disease Awareness Month: Living with CIDP & Why It Matters[Photo source: Gemini] Zebra is the symbol of rare diseases, and when I first wrote a prompt for AI to create an image, my initial thought was just… make a zebra. But then I paused. Why settle for plain? Zebras don’t just exist — they thrive in a demanding, harsh…
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Continue reading →: SCIg for CIDP Explained: What It Is, How It Works, and What to Expect
SCIg for CIDP: What I Learned About This Treatment Option I live with Lewis–Sumner syndrome, a rare variant of CIDP, so treatments like SCIg aren’t just abstract concepts to me—they’re part of my real, everyday life. In this post, I wanted to gather everything I’ve learned about SCIg in one…
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Continue reading →: My IVIg to SCIg saga – Practical steps to transition safely from IVIg to SCIg at homeI live with Lewis-Sumner syndrome, a rare variant in the bizarre CIDP family— as said many, many times before, why have a pain in your ass when you can have a mystery illness that ages you ten years just trying to pronounce its name? I was diagnosed in 2022 and…
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Continue reading →: IVIg vs. SCIg: 10 FAQ for Understanding Immunoglobulin Therapy for CIDPIVIg vs SCIg for CIDP: Pros, Cons, Side Effects & What Switching Really Feels Like I live with Lewis–Sumner syndrome, a very rare variant of an already rare neurological autoimmune disorder known as Chronic Inflammatory Demyelinating Polyneuropathy. As I’ve said before – why just have a simple pain in the…
CIDP & chronic illness insights: wellness, stress relief, and practical tips for everyday life
Hello
I’m Anna
I live with Lewis-Sumner Syndrome, a rare variant of CIDP.
On this blog, I share my experiences, coping strategies, and small adjustments that help me navigate daily life with a rare chronic neurological condition.
Whether you’re managing CIDP or another chronic illness, you’re not alone here — and I hope these reflections and tips make your journey a little easier.
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