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Continue reading →: The CIDP diagnostic Process: Tests, mis-diagnoses & what to ask your neurologistMy CIDP Diagnostic Journey: A Real-Life Medical Drama I live with Lewis Sumner Syndrome, which is a rare variant of CIDP. My path to a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) often felt like navigating a maze, except every turn came with more confusion, fear, and uncertainty about what…
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Continue reading →: Understanding Nerve Damage and Healing in CIDP: A Guide for WarriorsHow Are the Nerves Damaged in CIDP? My Journey with CIDP: Learning to Live with the Uninvited Companion First things first: I manage life with CIDP, the Lewis-Sumner Syndrome variant. Exploring, reading, and joining CIDP support groups on Facebook wasn’t easy for me. In the beginning, I saw it as…
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Continue reading →: CIDP Nutrition Guide: How to Combine Vitamins and Minerals for Nerve Health and EnergyWhen Healing Starts with a Mirror When I’m in the hospital, I see a lot of sick people. I mean a lot. Not only in my ward, where I stay for my IVIg treatments, but also when I walk around — to the little shop, or to meet my aunt…
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Continue reading →: Living with CIDP: Finding Strength in – “What Matters – Values as Guides” Self-Help BookGerman book but universal message – CIDP Warrior’s Compass: What Matters and How Values Guide the Journey A long time ago, I received a book from a special friend of mine. It’s called “Worauf es ankommt” (“What matters. Values as guides” in eng.translation) by Uwe Böschemeyer. I don’t know the…
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Continue reading →: Living with Invisible Disabilities in CIDPInvisible Disabilities in CIDP: Understanding Challenges and Life Lessons Last summer, I flew with Austrian Airlines from the USA to Poland and contacted the airline in advance to request assistance for passengers with disabilities. I needed some support (I won’t go into details), and they were very helpful—it made my…
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Continue reading →: 8 Easy Hydration Tips for Managing CIDP SymptomsSip by Sip: How Proper Hydration Supports Life with CIDP Long story short: I have Lewis – Sumner Syndrome, a variant of CIDP, and I receive IVIg treatment every few weeks to manage its symptoms. This post was inspired by a rather dramatic experience during my last IVIg hospital stay…
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Continue reading →: 35 Mindful Living Tips for People Navigating CIDPSmall Shifts, Big Difference: My Journey into Mindful Living with CIDP Living with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is no walk in the park. In this post, I’m sharing 35 mindfulness-based self-care practices made especially for those of us living with CIDP, autoimmune nerve disorders, or any chronic illness that…
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Continue reading →: CIDP warrior Wellness Tip: Relax and Recharge at Budapest’s Széchenyi Thermal BathsWellness Travel for CIDP Warriors -Our kind of Place Just before my May IVIg hospital stay for my CIDP / Lewis Sumner Syndrome, my husband and I took a short car trip getaway to Budapest—and oh, what a trip it turned out to be. I usually like traveling with no…
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Continue reading →: Vitamins and Minerals Recommended for CIDPFeeding Your Nerves: Why Nutrition Is a Big Deal in CIDP I live with Chronic Inflammatory Demyelinating Polineuropathy, with its rare variant called Lewis-Sumner Syndrome. When you’re living with CIDP, your nerves are under constant stress from inflammation and immune system confusion. Good nutrition gives your body the raw materials…
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Continue reading →: Navigating CIDP: Symptoms, Variants, and Effective TreatmentsFrom Classic to Atypical CIDP: A Guide to Symptoms and Treatments Living with my Lewis Sumner Syndrome condition is trying to understand what I am up against, and all I can tell for sure it is not easy. CIDP is still, for the most part, a “mystery illness” for me…
CIDP & chronic illness insights: wellness, stress relief, and practical tips for everyday life
Hello
I’m Anna
I live with Lewis-Sumner Syndrome, a rare variant of CIDP.
On this blog, I share my experiences, coping strategies, and small adjustments that help me navigate daily life with a rare chronic neurological condition.
Whether you’re managing CIDP or another chronic illness, you’re not alone here — and I hope these reflections and tips make your journey a little easier.
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